Definition

  • Spina Bifida: A congenital neural tube defect where the spinal cord fails to close completely during early fetal development.

Prevalence in India

  • Approx. 4 cases per 1,000 births – among the highest worldwide.
  • Over 25,000 children are born with the condition each year.

Clinical Features

  • Neurological: Hydrocephalus, partial/complete paralysis of lower limbs, paraplegia.
  • Urological/Gastrointestinal: Urinary and bowel incontinence.
  • Orthopaedic: Visible swelling on the back, club foot, other deformities.
  • Cognitive: Intellectual abilities are usually normal.

Impact on Health & Society

  • Increases under‑five mortality and long‑term disability burden.
  • >75% of affected children lack access to specialised medical and surgical care, leading to financial and emotional distress for families.
  • Escalates long‑term healthcare costs and strains public health resources.

Prevention & Public Health Measures

  • Periconceptional folic acid supplementation can prevent >70% of spina bifida cases (global evidence since 1991).
  • Fortification of commonly consumed beverages (e.g., tea) with folate and Vitamin B12 is being explored to curb neural‑tube defects.
  • Integration with existing maternal‑health programmes (e.g., National Rural Health Mission, Pradhan Mantri Surakshit Matritva Abhiyan) is essential.

Policy & Programme Implications

  • Constitutional backing: Article 21 (right to life) extends to health protection for children.
  • Need for mandatory folic‑acid fortification of staple foods (e.g., wheat flour) under the Food Safety and Standards Act.
  • Strengthening service delivery and specialised paediatric neurosurgery capacity in district hospitals.
  • Aligning with SDG 3 – Good Health and Well‑being and the National Health Policy’s focus on preventive nutrition.

Recent Research

  • Studies suggest tea fortification with folate & B12 could simultaneously address anaemia and neural‑tube defects.
  • Ongoing trials on community‑based supplementation models to improve coverage among women of reproductive age.

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