Definition
- Spina Bifida: A congenital neural tube defect where the spinal cord fails to close completely during early fetal development.
Prevalence in India
- Approx. 4 cases per 1,000 births – among the highest worldwide.
- Over 25,000 children are born with the condition each year.
Clinical Features
- Neurological: Hydrocephalus, partial/complete paralysis of lower limbs, paraplegia.
- Urological/Gastrointestinal: Urinary and bowel incontinence.
- Orthopaedic: Visible swelling on the back, club foot, other deformities.
- Cognitive: Intellectual abilities are usually normal.
Impact on Health & Society
- Increases under‑five mortality and long‑term disability burden.
- >75% of affected children lack access to specialised medical and surgical care, leading to financial and emotional distress for families.
- Escalates long‑term healthcare costs and strains public health resources.
Prevention & Public Health Measures
- Periconceptional folic acid supplementation can prevent >70% of spina bifida cases (global evidence since 1991).
- Fortification of commonly consumed beverages (e.g., tea) with folate and Vitamin B12 is being explored to curb neural‑tube defects.
- Integration with existing maternal‑health programmes (e.g., National Rural Health Mission, Pradhan Mantri Surakshit Matritva Abhiyan) is essential.
Policy & Programme Implications
- Constitutional backing: Article 21 (right to life) extends to health protection for children.
- Need for mandatory folic‑acid fortification of staple foods (e.g., wheat flour) under the Food Safety and Standards Act.
- Strengthening service delivery and specialised paediatric neurosurgery capacity in district hospitals.
- Aligning with SDG 3 – Good Health and Well‑being and the National Health Policy’s focus on preventive nutrition.
Recent Research
- Studies suggest tea fortification with folate & B12 could simultaneously address anaemia and neural‑tube defects.
- Ongoing trials on community‑based supplementation models to improve coverage among women of reproductive age.
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